Parents who opt for private screening will need to stay in touch with their pediatrician regarding the results, Therrell notes. Furthermore, neither the doctor nor state health department officials may know what to do if the baby has a rare condition. In such cases, parents should research the condition and aggressively seek out a specialist with knowledge about the disorder. Keep in mind that after testing, the overwhelming majority of parents will receive the happy news that their babies are fine. Having that reassurance is well worth the time invested in researching the tests and the $25 to $60 spent on them.